“ZTTK patients typically have intellectual disability, motor and speech delays, seizures… Many do not talk, never achieve independence, or have children.”
If this was your child’s future, what would you do to help them?
Our Mission
We are supporting research to develop treatments or a cure for Lukie and others with ZTTK. We are working with the global ZTTK SON-Shine Foundation and dedicated scientists and clinicans who are experts in drug development for ultrarare neurodevelopmental diseases like ZTTK.
All funds raised will be used for charitable purposes to fund research for the development of treatments or a cure for Lukie and others with ZTTK.
Our Research Progress
During February 2025, we were honored to share our story and reseasrch roadmap at the 10th Annual Rare Disease Day Event, “An Era of Innovation for Rare Diseases,” hosted by The Termeer Foundation in collaboration with the Broad Institute of MIT and Harvard‘s Ladders to Cures Scientific Accelerator.
